To read or not to read

I’ve got a twelve-year-old struggling to read and a school that says they’re “done with reading,” meaning that they assume everyone has mastered the skill by now, and they are moving on to more in-depth uses of reading. Since this kid was in second grade, I’ve been told he had “symptoms of dyslexia,” but he was denied the diagnosis due to other disabilities, which meant he hasn’t gotten any particular help aside from what his blind Mama could give.

Now they’re saying that boat has sailed, and no help will be provided regardless. He also can’t get access to text-based accommodations, so he’s failing social studies and science, subjects where reading is now the primary access point.

And of course, this is hard on his self-esteem, the key component of the motivation to “work hard”—the school’s primary suggestion.

Teachers are likely to point fingers at parents in these situations, but some kids struggle, due to disability and the diagnosis of dyslexia is narrower than most people realize. I’ve read to my kids every day—stressed or not, exhausted or not—since before they could sit up. It wasn’t a chore for me. I love reading and I love kids’ books. I also started them on early phonics at age two and they’ve done practice reading every day. In short, it isn’t for lack of opportunity at home.

Image via Pixabay - A somber young man reading in a dim space

One of my kids was given a bit of school-based intervention for dyslexia, even without the formal diagnosis, and that one has now taken flight in reading, despite significant neuro-developmental disability, reading for fun and thus gaining the strength to also use reading for information gathering.

But the other one has been left behind, despite vigorous daily efforts at home. There have been many tears over it and plenty of pressure to “just let it go” from other adults who don’t want to deal with the hassle.

You’re reading a blog, so I’m betting you enjoy reading or at least don’t find it to be an odious chore. That actually makes this a hard topic to truly discuss because it may seem obvious that we all agree on it, at least here in this forum.

But the problem isn’t so much whether or not you personally read. It’s how important reading is, what we should do to help struggling readers, what resources should be devoted to making sure everyone has access, and last but not least, what you read.

Oddly enough, to explore these questions of reading, it helps to look at the numbers.

The separating gets serious by third grade. Third graders who can’t pass a basic reading proficiency test are 5 times less likely to graduate from high school. About a quarter don’t pass.

In sixth grade the divide sharpens. The vast majority (82 percent) of sixth graders who fail an English class never graduate from high school, even late or with a specialized diploma. And yet, the school tells me we have to “wait and see” for any help for my sixth grader.

By this age, 85 percent of the curriculum is taught through reading. Kids who struggle to read and don’t get the help they need have high rates of discipline and emotional problems because of the huge toll on their self esteem. They not only drop out at higher rates and don’t attend further education, but they have great difficulty in adult life, accessing information and employment. They become an easy mark for scam artists and debt sharks.

Now, I do know people who read well enough and function as adults, who even went to college but don’t particularly like to read. Despite the stereotype that bookish people are socially isolated, I observe that people who don’t read books are often noticeably more arrogant and unfriendly as well as less happy, something that large-scale research bares out.

A study by Kingston University found that people who read books (rather than watch TV or videos for entertainment) show significantly higher levels of empathy and cooperative social behavior, essentially the building blocks of civilization. The more a person reads fiction, the more empathy for others they gain, likely because one of the functions of fiction is to imagine oneself into a different person’s life, much more so than when watching a story on a screen, where we are still always on the outside looking in.

But so what? Isn’t it up to each individual to choose to read or not?

Pew research showed last year that 23 percent of American adults said they didn’t read an actual book (digital or otherwise) in the past year. On the surface, that doesn’t seem too bad. It’s less than a quarter and not everybody cultivates reading books as a hobby.

But if you break that number down, it becomes more troubling. A full 11 percent of college educated adults didn’t read a book in the past year. Given that they went to college, it seems likely that whatever field they’re in, it would make sense to read at least professional books or self-help or how-tos, but that 11 percent doesn’t.

It gets even more disturbing as you dig deeper into the data. While white adults (20 percent) and black adults (25 percent) reported not reading a book at similar levels to the average, Hispanic adults had a much higher rate of not reading (38 percent). And why is that so troubling?

Maybe Hispanics just don’t like to read. But that doesn’t make logical sense. As a minority, Hispanics still struggle in education, but not significantly more than African Americans or other minorities. Instead, it has to do with the fact that they speak a different language and yet live in a country with a very dominant, official language.

The very existence of the descrepancy between everybody else and Hispanics in America shows that it is NOT just that 23 percent of Americans are disinterested in reading (and by some people’s measure, just plain lazy). For a large part of them, it is a matter of access.

Yes, we can download digital books in Spanish, those of us with the money to have good phones and a subscription. But it’s harder to just go to your local library and find more than a handful of books to read in Spanish. It’s harder to get a Spanish-language book at a Scholastic Book Fair or a garage sale or even just from a friend.

Of course, if an individual Hispanic person focuses a huge amount of attention on obtaining Spanish-language books, they’ll likely get them. But it takes a lot more time and energy, so there are simply fewer people who end up going through it.

Similarly. the percent of people who haven’t read a book in the past year and household income shows an unfailing inverse relationship—with 30 percent of adults with a household income of less than $30,000 per year not reading and only 15 percent of adults with income greater than $75,000 per year not reading. In this case, both time and money may be issues, because people with lower incomes tend to work more hours and have less free time (one of those counter-intuitive facts of our economic system).

Of course, the causation does go the other way as well. People who can’t read well can’t get even trade education, can’t get jobs, can’t keep jobs, can’t navigate bureaucracies, and can’t pay bills, keep out of debt or avoid scams. They inevitably have far fewer opportunities in life, because of the society we live in.

Sometimes I’m frustrated with my sixth-grader who feels demotivated about reading, since he’s been struggling with it as long as he can remember with little help and no end in sight. At other times, I think of the life he might have had in a different era. Life was hard when people lived primarily by agriculture, but this kid is a hard worker, brawny and excellent with animals. He would likely have been fine. He’s agile, healthy as a horse and a good shot. He would have made a superior hunter-gatherer as well.

Just as with so many other disabilities, it is the society we live in that dictates which disabilities are the most limiting. Missing a hand, could have been meant hunger and even death in many ages past. Today, it isn’t considered much of a big deal. But a reading disability seriously exposes a person to our world’s worst dangers from health and safety to hunger and homelessness.

I see this kid with many other things that are important to him and the need for reading to get through the rest of school and to function in our society seriously cuts into the time and energy he has for other things. Struggling with reading often takes up the majority of our evening free time.

Even knowing the vast benefits of reading and my personal love of it, I do sometimes wish we could just focus on the things that this kid is good at and that matter to him. But how can I let it go as a parent, in good conscience, knowing the costs.

What I know is that reading is essential if one is to have choices and genuine freedom in today’s world. It is at least as valuable as a major sense like sight or hearing. If a child was blind and there was a sight-saving surgery available, it is hard to imagine that our society would just say “Tough luck.”

But this is essentially what our schools have told us for years. The expense and trouble it would take to do individualized work to help a struggling student to read is deemed unreachable. We’re either told it is too early for intervention or now suddenly it’s too late.

To read is the quintessential skill of the modern world. It makes a particularly enriching hobby. but it is also an absolute necessity even for those who don’t revel in it. To read or not to read. Now that truly is the question that matters today.

Advanced Writing Tips: Problematic and irritating disability tropes to avoid in writing

I'm going to make an assumption here. I'm assuming you as a writer, whether you have a disability or not, want to write pedal-to-the-metal, amazing plots with characters that grab readers by the throat and don't let go until they cough up cash for your next book. 

Or something like that. 

So this is not a whiny post about all the bad, prejudiced books out there that treat disability issues poorly. This is an Advanced Writing Tips post to help you avoid pitfalls that distract, lose and piss off readers. I happen to be legally blind, but I'm a writer first and I have to think things through when I write about characters with disabilities just like anyone else. 

Creative Commons image by Tim Evanson

Creative Commons image by Tim Evanson

We want our writing to be fresh and original. That goes without saying. We don't want to rehash the same stuff people have been doing for decades. That's boring. We also want our characters to be emotionally realistic (i.e. relatable for readers).  When it comes to writing about characters with disabilities it is all too easy to get sucked into cliched tropes that not only drag the story into old ruts but also make the characters more annoying than relatable.

And in many cases, even when the writing is good, tired tropes simply piss off readers with disabilities, who are at least 15 percent of the reading population and thus a hefty chunk of your market. An even heftier chunk if you count their close family members, who will likely be just as pissed off by annoying tropes.

One of the sticky problems of disability tropes is that avoiding one cliche too vigorously can make you stumble into another by accident. The most important thing to keep in mind when writing about a character with a disability is that people with disabilities are much more like abled people than they are different.

So if your character has a disability, that probably isn’t their main characteristic. It’s something of side importance most of the time, even if the story centers on something related to it. Your character has many interests that aren’t what you would expect from that sort of disabled person.

For example, I am legally blind but I’m pretty good at graphic design because I happen to have a brain wired for visual thinking. Bad combo but I didn’t get to pick. I’ll never be great at graphic design, which I might have been if my eyes weren’t screwed up. I am, on the other hand, terrible at music, which is often a stereotypical interest for blind characters. I do like music and I tried hard to play the flute for five years as a child but I was never very good. It was way harder to memorize all that music than it seems when blind musicians do it.

Other than that, here are the most common story pitfalls to avoid when dealing with a disabled character:

Creative Common image by Wheelchair Basketball Canada 

Creative Common image by Wheelchair Basketball Canada 

  1. Bounce-back magicians: Characters who become disabled and immediately (within months, weeks or even days) are able to function in amazing top form, handling everything without help and having better developed other senses or muscles. (Yes, people with disabilities find other ways of accomplishing things and can function fast and happily in almost every situation a abled person can but it takes years to learn the specialized skills, to develop different muscles and to learn to read other senses to compensate for a sensory loss. It takes years and often specialized training and education. There are already way too many stories and movies out there about a disabled character's miraculous recovery and given the propensity of fiction to speed up medical miracles, we come across characters who adapt unrealistically quickly. This is not only old and boring, it is also highly annoying to people actually struggling with these issues. There are very few stories or movies that portray a realistic struggle and show the grit of real people with disabilities. Possibly a good plot line or six there.)
  2. Superheroes in non-magical stories: Characters with super powers or super sensitive senses where they don't belong. (I am legally blind and I can throw pebbles across a ditch to tell how far I have to jump by sound, I can often sense obstacles by echolocation and I can almost flawlessly tell what my young children are up to in the other room by hearing. But I am sick to death of the cliched character who is a martial arts master and totally blind, who can hear how their opponent is swinging a sword so precisely that they always win easily. Yes, blind people sometimes appear to have super hearing to sighted people but controlled hearing tests show that we have no better technical hearing ability than anyone else. What is true is that people who have lived without a particular sense for a long time (think decades) learn to pay much more attention to their remaining senses and interpret meaning from things others would ignore. People with various disabilities have adapted skills that abled people have because they are not forced to practice such specific skills minute by minute for years. But this is about skill and muscle, not super powers. Despite my abilities in interpreting sounds, I'm still pretty tone deaf and have a terrible ear for recognizing voices. There are things you can train and things you can't. Keeping this realistic and ensuring that your disabled character has had years to adapt to their disability, if you want them to be really skilled, are essential to making characters relatable.)
  3. Gracious suicides: Disabled characters who nobly commit suicide to escape their unbearable existence and reduce the burdens on abled characters. (This is another type of trope entirely and it is the kind that will get your book or movie thrown across many rooms with enough force to break the binding. The movie success of "Me Before You" has made this trope famous recently but it has been around for decades, probably centuries. If you have any confusion on this, here's the crux. Being disabled is not an unbearable existence and portraying people with disabilities as a burden whose best shot at heroism is to commit suicide to lift their burden from others is wrong in so many ways. But from the writer's perspective it is just cliched, overdone and old hat. It is also maudlin and melodramatic, and it relegates a major character to a paper cutout prop for other characters. Just don't do it. Euthanasia can be explored in much more realistic and mature ways.)
  4. Inspiro-porn stars: Characters whose primary purpose is to inspire others through their stoic courage despite suffering. (There’s a term for this. It’s called “inspiration porn.” It’s like porn because it is designed to generate a strong, involuntary emotional response in the reader/viewer and it makes the reader/viewer feel good and almost euphoric for a short time at the expense of reducing another person or character to a prop for the edification of others. People with disabilities are not any more stoic than other people and they shouldn't be expected to be. Disabled characters should be allowed to become overwhelmed and emotional about difficult things in their lives, related to disability or not, just like any other characters. Certainly, if you are writing about a hardened detective or other James-Bond type hero who happens to have a disability and he/she is stoic and doesn't complain when their arm is severed in a fight because that's just what kind of individual he/she is, that's a different matter. But it is not “courageous” to simply live with a disability and not go kill yourself (see trope #3). Most people with disabilities live pretty happy lives where their struggles are often not related to their disability. It can be irritating to deal with a society that isn’t ready to include our differences, but it isn’t like we lie in bed in the morning and muster the courage to live. We muster the patience to deal with ableist barriers and weird social reactions but that’s more patience than courage. It can take a lot of mental struggle for people who are newly disabled to see that their new situation is livable but people handle it in various ways due to temperament and all of those ways are normal and acceptable. Here too there are several good potential plot lines that have rarely, if ever, been explored.) 
  5. The crip in distress: The dependent invalid or the one who must be saved. (This is less common today but it used to be a big trope. It is still very tired. No one really wants to read stories where a secondary character is a disabled child or other who the hero is going to save from their terrible fate. I'm not going to belabor the point. Just avoid doing this. When you need a hero to save someone in order to be heroic, it is always better to make the person being saved a three-dimensional character as well. What would be a cliched "rescue plot" can gain immense punch with more careful characterization.)
  6. Last-minute cures: The plot arch in which the cure of the disability is the solution to the plot problem. (This is a huge one today,, which has kind of taken over the 19th and early 20th century trope number 5. I see stories far too often today where the plot revolves around a character wrestling with the psychological and physical effects of a disability. Sometimes the character is a mess and has to learn the courage and stoic fortitude in trope number 4 or the adaptations in trope 1 and toward the end of the story he or she does adapt and things look okay, tolerable and the disability is mastered. But the author betrays their internal belief that disability is still too terrible and the disability is cured in the end. So the character finds that they could live well with such a disability and then they are rewarded with a cure that takes the disability away so they don’t have to. This isn’t impossible in terms of a realistic event narrative but it has been done and done and done and it is far from the norm of disability. It displays an underlying assumption in society and on the part of the author that no adaptation or psychological resolution is actually good enough and the only positive outcome is to get rid of disability altogether.)
  7. Pre-adventure cures: The disabled character who is magically cured at the beginning of the story so that they can go on an adventure or be a hero. (This is a minor but highly annoying fantasy trope. Sometimes my pulse will quicken as I read the blurb on a new fantasy book that says the main character is disabled, only to find that the initial plot point is that the disability is magically cured, so that now the formerly sedentary protagonist can now go off on an adventure or become a hero. That's what happened in The Last Words of Will Wolfkin by Steven Knight. The message in stories like this is all too clear. People with disabilities are seen as helpless and useless. They can only be victims or people to be rescued, never a hero in their own right. This is a problem and the whole premise of the disability being cured in the first chapter is just weak and disappointing as a plot spur in any case.)
  8. Fakers and manipulators (This is one that will send me and many others into vicious bad review mode faster than any other. In fact, I’ll give a bad example right here as a bad review. Yes, I’m naming names. The Netflix series "The Good Wife" would be a fairly decent dramatic lawyer show except that it uses this trope several times. The one disabled major character in the show is a lawyer who slyly and manipulatively uses a tardive dyskinesia disability to derail arguments, manipulate judges, plead for sympathy from juries and so on and on and on. It is really all his character ever does. He is the only major disabled character and here this is finally a show with a disabled lawyer as a character. Another minor character is the son of a rival politician who has leukemia. The child is used as a media gimmick to gain public sympathy for an otherwise unsympathetic politician. The fact that this show uses both these "faker" stereotypes without including other people with chronic illness or disability points to some serious bigotry somewhere in the production chain. Abled people are likely to protest that “Well, this happens in real life!” In fact, it almost does not happen. It is exceedingly rare for people to fake a disability in public to gain sympathy and it is impossible to fake a disability medically given medical technologies today. People with real disabilities do not fake or exaggerate their difficulties to get attention or sympathy. Yes, I know some beggars pretend to be missing a limb or to be blind to get sympathy and donations. These people are rare anomalies who you see relatively often because they place themselves in highly frequented areas. They are a tiny fraction of reality. The trope in fiction and the stereotype in real life that some non-disabled people fake a disability and some disabled people exaggerate their difficulties to get attention, sympathy or advantages is so tired that the dead horse has decomposed. Furthering this trope is unforgivable today in a society where everyone should know better. Works that promote it actively harm people with disabilities and cause us to be accosted and accused of faking at random moments in public. Every time an book or movie portrays such a stereotype, real events result in which disabled children and adults are mocked and dismissed. Do not do it. It's like portraying a black person as a monkey. Sure, some black children eat bananas and jump up and down pretending to be a monkey, just like some white children do. It happens. But we don't do it in fiction for very good reasons. The same goes for fictional portrayals of people faking disability. Disabilities are extremely varied and you won’t always understand why a mother with a white cane on the train who uses a disability transport card is reading a printed book to her children (that would be me). But it is just the way optics work and no one is faking.)
  9. Charity applause: Disabled protagonists who are good "for a disabled person." (This is a particularly tired one but it still comes up sometimes in children's literature. Much may be made of a character's accomplishments because they are pretty good at something "for a disabled person." There is a legitimately difficult line to walk for writers here. It is natural to write about the accomplishments of someone against the odds. We all know that it is an achievement for a wheelchair user to play wheelchair basketball. And a sports story about a kid's dream to be a star in wheelchair basketball is fair game. But it isn't attractive or interesting if the point of the story is that everyone claps for little Jimmy who tries to play with the abled kids but he's really very bad at it and the climax of the story is the one time he makes a basket. He was so good, considering he's disabled, but really he was awful by any other standard. Boring.)
  10. Automatic no-threat sign: A character's disability used to show that they are not a threat in competition. (Sometimes a secondary character in a story has all the hallmarks of a good, positive disabled character. It's often the best friend or sidekick of the main character. The thing is that the secondary character is disabled, and the assumption is made clear in the story that this means the disabled character will always be the follower and is never a competitor for top jobs. This character is a great confidante when it comes to love interests because he/she is "obviously" not in the running for romance. This is overused and obviously annoying. It's also very boring.)
  11. Prince or princess Not Sexy: The disabled hero who wins everything except love. (This is a special little trope that crops up every now and then. The most famous example is probably "The Hunchback of Notre Dame" Disney musical. The hunchback did all the things most Disney princes do and won but instead of getting a beautiful princess and everlasting happiness in the end, his great prize is that he is tolerated in public. Causing your readers/viewers to gag on vomit during what is supposed to be the heartwarming end is usually not part of the plan. Don't do this.)
  12. Gimpiness as the evil trope: The villain who is obviously a villain because of a disability. (I am personally simply perplexed by this one. There are so many villains in modern culture who are disabled. They far outnumber the number of disabled protagonists. If any racial group was so universally portrayed as "the bad guys" it would be a topic of anti-discrimination activism. But today disability has replaced the dark visage as the quick and easy way to show who the villain is. They walk with a cane, breathe with a machine, need magic to keep their body together or whatever. There are theories about how this is related to a hard-wired human fear of deformity and disease. The first zombie movies were about AIDs victims and I am sure the cheap play on people's fears has something to do with it. But quick and easy or not, it is just as problematic as having all your villains be dark-looking. At the very least, we need to balance the number and major positioning of disabled protagonists.) 

I know this list might feel overwhelming. And contradictory. You shouldn't portray people with disabilities as too good but you can't make them villains either. You can't make your disabled characters too strong and resilient without risking them having "super powers" but you shouldn't let them become weak two-dimensional props in need of rescue either.

It often seems like it would be a lot easier to just not include characters with disabilities at all... which is what most writers have done for ages. The worst trope of all isn't actually on the list, because the worst message about disability that we can promote in our writing is voiceless obscurity. When we don't give a character here or there a disability we contribute to a society in which people with disabilities are ignored, dismissed and isolated. 

It may be hard to avoid the pitfalls, but it is worth it. Including a character with a disability in your story, even without making the story about that disability, opens up a large and hungry market for your work. When there is too little of something in books, readers want it. Write well about characters with disabilities and you'll get a boost in reader loyalty and discoverability. 

So do write about characters with disabilities. Just do it smart.