So, let me get down to why a little. My eyes look strange and that's off-putting. Subconsciously. They're squinty and the move strangely. I also can't do those basic social things like smile at a person in a group to show that I recognize them or use another person’s name and make eye contact when I say hello after all. Sometimes I don’t even acknowledge a friend's presence with a polite hello.
As so many times before, my fellows at the retreat soon thought of me as aloof and somewhat antisocial. They began to ignore me. Those few particularly thoughtful souls who initially made the effort to greet everyone they saw in the morning or at meal times stopped saying hello to me.
Is this hard to believe? I’ve tried to explain it before and friends often shake their heads and say that surely people are not so quick to judge. But I’ve seen it happen over and over again and again, every time I join a new group. My friends ask me why I don’t just tell others that I can’t see them and can’t recognize them. And yes, I do that sometimes. I used to do it more. But it almost always backfires and creates even more severe social problems. People don't understand why I am telling them this when we first meet.
And it isn't primarily a conscious judgment people make. For adults, it is a function of the business of life and the fact that social situations are chaotic. They simply prioritize those they connect with more easily. And then when there is a connection with me and I then say I don't know their name, they are a bit offended.
I would bet you don’t think you would be offended by a person with a white cane if they asked for your name after several days of intense conversations. And maybe you are the exception.. But I have seen it happen more times than I care to count. When I come to the point when I can actually recognize a person's voice after either several days of close-quarters contact at an event or several months of occasional contact among neighbors, I have asked for a reintroduction with a name and people go cold with shock. They have known me for a long time, by their reckoning, and the idea that I was "faking" that I knew them all this time is very disconcerting. They feel betrayed and used. The budding friendship ends. So, I have learned to keep my mouth shut and hope for a clear mention of their name by someone else in a situation where i can tell who is who just from listening.
At this retreat, I vowed that I would do things right. I wrote down names and notes about people. I forced myself to focus on pretending to make eye contact by looking joyfully into the blurry dark spots where people’s eyes usually are. I greeted guests at the mountain lodge brightly and ended up with several quizzical responses from people who were not part of our group. But it wasn’t enough. Plenty of times I felt someone brush past me when I had not been quick enough to greet them in the hallway. By the second day, none of our group said “hello“ or “good morning“ to me anymore.
I could hear conversation going on all around me at meal times, but I was outside of it. When I tried to participate the effect was awkward and I often ended up interrupting people anyway because I couldn’t see them taking a breath or see the the focused look in their eyes that people know means someone is about to speak.
On the fourth day, I was sitting next to two other women at the outdoor fire, listening as one questioned the other on a point about a new law that would affect our group. Interested, I leaned into the conversation and asked a question of my own. The woman who had been holding forth turned on me and demanded “What?” with irritation in her voice. It was clear that she had considered their conversation to be private, even though we were sitting close together.
I was gradually falling out of the group. I’ve seen it happen time and again as an adult. Everyone else knew everyone else's name. This was a group that prides itself on being inclusive and friendly. They all greeted each other on the garden walkways outside or in the common room both with words and eyes. They noticed that I didn’t do these things, but they didn’t make the connection to the fact that I couldn’t see them, partly because I walk and hold myself like sighted people do. I have learned mobility well, in some ways too well.
Toward the end of the week-long retreat, I was having a particularly difficult morning. I felt isolated. No one had spoken to me the day before. And that morning the group activities were impossible for me to participate in. One involved remembering some words the presenter wrote on a flip chart at the front of the room. Except the presenter didn't mention that there were words on a flip chart because everyone could see them and we were half-way through the activity before I realized what I was missing. By the time I went up to the chart and copied down the words the activity was over.
The next activity was a dance workshop. It was supposed to make us feel good, creative and free, while we learned specific dance steps. Everyone was up in the middle of the circle. The music was lively. Most people had seen these dance steps at previous retreats. I remembered the painful dance workshop from the year before too. I like to dance and would have loved to know the steps, but the presenter simply demonstrated the steps in the middle of the group without words or description. She emphasized the steps once for the group slowly and then moved faster.
Even the slow demonstration was a blur to me. I had made sure I was standing near the presenter but I still couldn’t see her feet beyond the blur. I could hear the rhythm and I tried to guess. If the presenter had gone slowly three or four times and described the steps, I could have done the rest by listening to the rhythm. But there wasn't time. Many of the participants were kids and they had to keep things hopping. Most people already knew those dances from previous years anyway. I was the only odd one out.
So, I didn't ask for help. It would have disrupted the whole group. And that was why my nerves were raw as I came into the cafeteria of the retreat area for lunch with my four-year-old son.
I approached two places at one of the tables that seemed to be free. “We’re sitting there,” a woman’s voice came from behind me as I pulled the chair out. I looked around. There were clearly no other places left inside the cafeteria, maybe one alone in a corner but not two for me and my son.
A few people always had to sit outside in the direct sun with swarms of wasps at every meal, because the cafeteria is too small. That was hard on me. The bright light is very uncomfortable for my eyes and I can’t see the wasps, so the chances are very high that I’ll be stung, particularly on my mouth or tongue, while eating.
Trying to sit inside, I had been asked to move at every meal. Each time the reason was something like, “We want to sit here with our friends,” or “We’ve been sitting here all week. This is our table.” By this time late in the retreat, all the places inside had become someone’s “regular spot.” And I was in no regular group of friends. I had no regular place. As usual, I was being pushed out.
And it was a cafeteria again. Is there anything more hardwired in our DNA when it comes to social exclusion. There literally was no place at the table for me. I noticed that someone had in fact reserved these places with spoons, in order to go get the food.
"Fine. You all have your places and your friends. There's no place for us." I turned and snapped at the woman. She carried an infant in her arms and clearly didn't want to sit outside either.
The room went dark around me. The roaring in my ears blocked out sound. The cascade of trauma response had started and I couldn’t think straight. My heart was hammering and I was filled with seething fear, anger, shame and grief, beyond anything that is bearable. Certainly beyond any normal response to being asked to honor a seat reservation.
I whirled away then and tried to run out of the room. Some small voice of reason at the back of my mind was urging me to get away, not to have an emotional meltdown in front of people I wanted to befriend. But I couldn’t get through the crowd. The tenuous hold I had on my emotions slipped and I was crying, sobbing in front of everyone.
The woman who had sparked my reaction was shocked. She had simply been asking for the place that she had reserved and she had an allergy to wasp stings that could put her in the hospital if she sat outside. Others clamored around me, disapproving of my outburst and interpreting it as simple willful desire for that chair.
“What is such a big deal? Just go sit outside.”
“For heaven’s sake, you’ll get to eat too. You don’t need to force your way into everything."
"You're a bit overweight anyway.”
“You could try thinking of someone else for a change.”
I could only cry harder. How could I explain? They were already convinced that I was aloof. I didn’t know their names and they all knew mine and each other’s. This was so much bigger than not wanting to sit out with the wasps that I couldn’t see.
How can organizers foster inclusion in a group?
That sort of social disaster is usually where this sort of episode in my life ends. People feel that I have acted badly, selfishly and with too much emotion. I apologize profusely and flee. If I have to continue to be around that group for some reason, the relationship is strained and cold. Otherwise, I never see those people again. And the next time I try to make friends the same thing happens. No matter how hard I try to make it come out differently.
But this wasn’t the average situation. The organizers of the group had a deep interest in social inclusion. They didn’t notice the warning signs of social exclusion in the group, but once the meltdown happened they stepped up to the challenge. We worked out a plan together for how to prevent these sorts of problems, not just for me but for others as well.
And the very first bit of the plan implemented on the last day of this retreat had immediate and tangible results. The group was asked to break up into groups for a project. I dread such scenarios because the groups are always formed by preexisting friendships. I end up either the odd person out or in a group of those who are lackadaisical or disinterested in the project (those being the reasons why they didn’t manage to get a place in a “real” group).
But this time the organizers tried my first suggestion for fostering social inclusion, and the effect was that all the groups--not just the one I was in--were extraordinarily successful in their projects. The cooperation in my group was vibrant and one of the members of the group who had seemed most irritated with me led the group and included me fully.
