Of difficult children and intense adults

As a small child, I was variously known as “Squawk,” “Magpie” or “Anna Banana” among family and friends. These monikers all referred to my personality and vocal nature to one degree or another. I was, by all accounts—except my own— “loud,” “argumentative,” “obstinate,” “shrill,” “contradicting,” “willful” and “intense.” In short, I was what is called in today’s psychology literature a “difficult child.”

A neighbor reportedly once told my mother that if I had had a less patient mother, I would have been abused. I chuckle about it now, but I also have my own children and I’ve seen just how far “loud,” “argumentative,” “obstinate,” “shrill,” “contradicting,” “willful” and “intense” can be taken. This kind of parenting isn’t for the timid… or even for most humans.

I’m reminded of this because there’s an old meme doing another round on the internet which makes a simplified case for the pop psychology concept that children with such difficult, stubborn or argumentative personality traits will mature into adults with strong wills, solid analytical skills and independent spirits—implying that “difficult traits” in children often transform into positive adult attributes.

I don’t remember “being difficult” as a child. I remember trying to please adults, trying to navigate the world with very little vision, trying to keep up with my brothers, trying to gain inclusion into groups of other kids, trying to play games I couldn’t see, trying, trying, always striving, rarely being allowed to just be in a place where I didn’t have to fight to hold my ground. And so, for the most part, I believe the reports about my combative, willful and shrill nature as a child.

I was always in a battle to keep up and be included. No wonder I came across as if I was fighting.

Of course, I’ve known quiet, passive, sweet-natured blind children. In fact, most of the blind kids I met at “blind summer camps” were more like that. I was an outlier. Most blind kids learned that the best way to get by in the sighted world was to be sweet in order to attract good things and then to wait quietly for hours to be noticed or occasionally included when it was convenient for the sighted majority.

I remember observing how they were treated and feeling very angry inside—on their behalf, I thought, though now I wonder. Mostly I’ve known only those two types of blind children—willful, shrill terrors like me (and reportedly Hellen Keller) and the sweet, passive flowers. The world greeted me with exasperation and accusations of “being a drama queen,” and greeted the other type with occasional pity and long-term indifference.

I’m told pity is a horrible thing to endure as a blind or disabled person. I don’t have a lot of experience with it myself. I’ve always been so intense, willful and self-advocating that I think I have mostly avoided that fate. So, I’ll reserve judgement on which response is worse, having little experience with the shade of green on the other side of that particular fence. That said, being constantly seen as “irritating” and “overly demanding” just for asking for a place at the table has often been hard.

I don’t know if I had much choice about my intense personality. I grew up in a rough-and-tumble physical world in the woods and hills of Northeastern Oregon—not in a town near them, but in them. I’ve known several legally blind kids who grew up in small, rural towns but spent most of their time indoors, doing sedentary things and waiting to be taken places. That was never a choice in my childhood. I was outside in the woods even as a toddler, trailing behind other kids, tossing pebbles to hear the terrain in front of me and yelling “Wait for me!” after my brothers with irritating persistence.

And I did gain some things the more passive blind kids lacked as a result. I learned such good mobility skills that most people don’t realize I’m legally blind. I have a workaround for just about every physical task that takes vision—from threading needles to hammering nails to flipping pancakes. (Not driving, of course. There are limits.) In my twenties, I often said I was fortunate to have had the childhood I did and the personality I had.

So, is the meme right? I was most of the things the meme describes about difficult children—stubborn, defiant, clingy, argumentative... I wasn’t particularly disobedient, or not more so than other children as far as I’ve heard. But did my stubbornness, defiance, clinginess and argumentativeness serve me well and result in positive adult characteristics in the end?

Today, I’m not so sure. While I was able to gain academic success by being “willful, demanding and stubborn,” I’ve often run into situations in the professional world, where these traits are not helpful and result in being shut out of opportunities. I’ve seen some of the quiet, submissive blind people I used to think had things worse than me gain stable—if often boring—employment and a small but steady circle of friends. Their way definitely has its benefits.

Even more troubling than that is my ongoing worldview of constant struggle. It is very hard to argue that it is unwarranted. I have only rarely chosen to fight when I didn’t have to. But my experience of endless battle against a hostile world has been isolating, not to mention stressful on a deep level. I would not wish it on any young kid.

As an adult, I’m often told that I’m “too intense.” Only rarely is that ever given any specificity, but I believe it must be related to my childhood traits. While I learned to physically adapt to my visual disability to a high degree, I’ve never cracked the code of non-verbal cues, eye contact and recognizing faces that are only vague blurry ovals to me. And yet, because of my stubborn and defiant nature, I keep banging my head against that communication wall, often to the irritation of those on the other side of it.

And watching my own kids and my students mature, I have a broader outlook on the meme’s conclusions as well. While it is true that some level of argumentativeness and spunk in a kid shows a likelihood that the future adult will be able to hold their own and not be passive or wishy-washy throughout their life, the conclusions of the meme are simplistic and ignore less savory realities.

In response, I made my own list of where difficult personality traits can lead in anyone—child or adult—if not tempered. This is not to say that I or anyone else who has the “difficult trait” is doomed to a negative future. But these are pitfalls worth watching out for, especially when parenting teens and young adults.

Here is my list to counter the meme above:

• Stubbornness untempered may lead to an inability to see anyone else's perspective and in its extreme form to arrogance and self-agrandisement.

• Defiance of reasonable and healthy authority too often leads to problems with law enforcement and experiments in criminality. (There is, of course, a vast difference between defiance of reasonable authority, such as a parent protecting a child from real hazards, and defiance of dictatorial and abusive power.)

• Disobedience of healthy and safety oriented rules can and does lead to serious accidents, teenage drunk driving, a high risk of death among young adults, experiments with dangerous substances, bad teeth, poor health and other long-term consequences young people often can't foresee.

• Clinginess in children is usually a healthy attachment behavior and possibly a sign that the world appears confusing and overwhelming to the child, which today is confusing and overwhelming to many adults. Yet, clinginess in older children or teenagers can be a sign of deeper insecurity, and if n to addressed therapeutically, could make the young person more vulnerable to abusive and controlling relationships.

• Backtalk (i.e. disrespect, insults and contempt toward parents) may establish distant or broken family relationships, lack of empathy, problems with other intimate relationships where the same disrespect and contempt habits come up, domestic abuse and bullying of others. (This should not be confused with teenage sassiness or moodiness, which while irritating are likely to pass and don’t appear to correlate with much of anything in adult personality.)

• The meme claims that children who don’t do what their parents say are less likely to fall prey to peer pressure. And yet this simply doesn’t hold up to real-world scrutiny. Not doing what they're told by parents is the opposite of not doing what their peers tell them. The primary reason most teens ignore their parent’s instructions is because they are doing things their peers are telling them to do which are dangerous or unhealthy. Hence why their parents are directing them to do something else.

• Always touching things that they shouldn't (after the age when this is simply normal) is a symptom of impulsivity, often neurologically based and not necessarily their fault. But still impulsivity is something that will cause difficulty in adulthood for individuals who experience it excessively, because significant impulsivity often leads to unwanted debt, accidents, addictions and difficulty achieving one's own desired goals.

Trying to raise teenagers in a world of distractions, addictions, scams and seductive ideologies is hugely challenging. Trying to raise teenagers with neurological disabilities that cause a high degree of impulsivity, obstinacy, negative mood and insecurity is terrifying. When I run across this type of meme, I see the underlying message—one from those not responsible for a struggling teen with a lot of at-risk behaviors to those who are responsible for such a teen.

What that message says is: “People who are not actually raising kids with these difficulties don’t understand but they think they know better than those who are in the thick of it.” The myth makes a much better and simpler meme than the reality ever will.

And to those—like me—who have these “difficult traits” whether you are old or young, I say that we are the ones with a choice. Stubbornness can lead one into resentment of others or it can be an asset in self-discipline. Defiance can be turned against those closest and dearest or against those abusing the planet and the vulnerable in our society. Disobedience to authority need not mean making decisions that harm you just to make a point. It can give the strength to take a principled stand. Impulsivity need not be your master. It can be an ally if marshaled and channelled. Clinginess could lead to codependency or being trapped in abusive relationships, or it could mean allowing yourself to be vulnerable and open in relationships.

The results of “difficult traits” are what the individual practices over the long-term.

Open letter to the disability advocacy movement

I am writing here as one of the poster children of this movement, as a person who truly owes my chance at even the most basic education to the movement. In April 1977, when I was exactly one year old, a group of disability rights activists occupied the federal building in San Francisco for 26 days with minimal food and supplies (and what they had was donated by the Black Panther Party).

The direct result of that protest was the implementation of Section 504, the foundational document of civil rights for people with disabilities in the United States, including the right to attend public school which was not at all assured for blind students, like me, at the time. (See the documentary Crip Camp on Netflix for further info.)

I am writing to those who carry on that tradition in myriad capacities—activists, advocates, teachers, lobbyists, policy makers and everyone else still working hard for the civil rights and equity of people with all kinds of disabilities. I write with overwhelming love and gratitude. And I also write with concern and to raise a flag of caution.

Image of a camp fire and sunset from my solo backpacking trip in the blue mountains of eastern oregon - photo by arie farnam

We have come to a time in this movement where we must be very conscious of what we are doing and who we may inadvertently exclude or abandon. This movement was founded on ideals of radical equality. We are for all people with disabilities and no one is too disabled to be outside our concern.

When I entered school in 1982 in a tiny rural town in Eastern Oregon, I entered a school that had still never served a child with a visible disability, and they didn’t want any. It was a small rural school without great resources and this seemed like a lot of extra work.

But Section 504 was law by then and unwilling and unfriendly as the school administration might have been, I went to school. All through the ‘80s, I fought “the good fight.” And when I say I was a poster child, this is literal. There were several disability rights posters with a photo of me in a tie-dyed shirt and giant glasses peering avidly at a computer screen at a distance of one inch. I knew about them and I approved. I wanted to be included everywhere. I subscribed to the demand for universal integration and the belief that people with disabilities could do anything anywhere.

In 1990, the ADA opened up more opportunities for me and I pressed every advantage, went to college and graduated suma cum laude. I was determined to “show them” (i.e. those who hadn’t wanted me in elementary school and anyone else with an ableist tendency). I was loud and proud. I would just barely admit that I wasn’t going to be a pro-basketball player or a jet pilot, but that was about it for concessions. Instead, I decided to become an international newspaper correspondent and spent several years tramping around war zones while neglecting to mention to my employers that I was legally blind.

I have written incessantly on this blog about the social exclusion that people with disabilities so often face. And this month I started taking a course to help me become a more effective parent advocate for my kids, who both have developmental disabilities. From poster child to foot soldier, this is my movement.

But becoming the adoptive parent of kids with Fetal Alcohol Spectrum disorders has shaken some of the fundamental slogans of that movement for me, slogans like “integration first” and “dignity means the freedom to take risks” and “self-determination at all cost.”

Those things were important to me as a visually impaired student and dare-devil young adult. So what’s the problem?

The problem is that each disability affects a very specific part of a body. Mine affects my eyes. It is ableism then to restrict activities that rely on or can rely on other parts of my body. It would be unacceptable to restrict me from being a parent, because of fears that I might not “see” my toddler swallowing an object and choking. Blind parents keep their toddlers safe by both carefully cleaning and listening with specific attention. There is nothing that says parenting is primarily about seeing.

It’s a different matter though when it comes to driving. Driving does rely very heavily on seeing and so far we don’t have an alternative that makes it safe for a blind person. So, that is specifically and legally denied to us and that, in my view, isn’t ableism, even though I expect people with my level of vision impairment to exercise good judgement and stay the hell away from steering wheels without being legally forced to. So, essentially, I’m okay with that law.

Now, let’s take another example, Let’s say a person with ADD wants to be an air traffic controller and they have the training and otherwise qualify. There are some pretty hairy attention and focus acuity tests you have to pass to do that job. Should people with ADD be legally barred?

No, there’s already a test. Some people with ADD may not be able to focus in the way needed for air traffic control. Others may actually be better at spreading attention across the entire field and thus ensuring they don’t miss peripheral input that could be essential. They should take a test that simulates the actual requirements of the job, like everyone else, and be hired or not based on that, not based on their disability.

I’d even be willing to adopt this standard for vision and driving. What if you just had to take an exacting simulation driving test that included poor light situations, sketchy traffic and small children running out into the road, instead of being qualified or disqualified based on your ability to read a chart in an office? Maybe a good idea! (But I’m still going to flunk either way.)

Most disability advocates ought to be on the same page with me so far. But there are underlying assumptions in the disability rights movement that were so deeply engrained in my thinking that they took years and incredible pain to extract.

We often assume that only certain human faculties can be a legitimate disability. Everyone, regardless of disability, can strive and work hard. Everyone, regardless of disability, can make their own decisions and exercise self-determination. Everyone, regardless of disability, does better with more information and chances to learn. Even, everyone, regardless of disability, is better off when fully integrated with able-bodied peers.

I used to believe these things with fervor. I still wish they were true. But they are not true for everyone.

It’s relatively easy for people to understand that any part or capacity of our physical body can be disabled. But it’s harder for people to grasp the complexity of brain-based disabilities.

Most of us have learned that dyslexia is a very specific thing that affects a person’s ability to process written words. It often has a few other side effects, but we get that a person can be dyslexic and struggle terribly with reading and still be extremely smart and capable in other mental areas. My husband and my brother are both dyslexic and both are college grads and very possibly smarter than me.

ADD is harder for non-experts to grasp, but the diagnosis has become so prevalent that I’m betting you can accept that ADD and ADHD affect very specific parts of the brain that govern attention and focus. Again, different people may have a variety of side effects along with that central effect, but people with these brain differences actually score higher on average on standard intelligence tests than the norm. It’s a disability that is located in the brain but it does not make a person unintelligent any more than my vision impairment renders me completely physically incapable.

BUT (and this is a really tricky “but") brain science has progressed far enough for us to understand that there are specific parts of the brain and brain faculties for everything we do and for every human quality. Importantly in this case, there is a part of the brain governing what are called “executive functions.” This is essentially the control center of the brain and it is essential for making decisions, understanding logic, time, and cause and effect, regulating impulses, emotions, desires and everything else the brain does, and even driving the ability to get motivated, prioritize or cope with frustration.

We are used to thinking of these things as “moral” issues. A person either makes good decisions, shows up on time, controls their anger and momentary desires, makes an effort, shows motivation and swallows frustration or they just deserve what they’ve got coming, which is nothing good from us or from society.

A person with profound developmental disability may have some disability in making decisions but generally not beyond the rest of their mental abilities. As a result, even though they have difficulty making decisions, their general cognitive difficulties are obvious to themselves and others. Hopefully, we accommodate them and they are able to realize their limits and accept help with decisions (like whether or not to rent an expensive apartment), much the way I accept that I can’t drive.

You know who doesn’t have the kind of good judgement about whether or not they can make a decision without help that most developmentally disabled people have? Drunk people. Yup, that’s right. Alcohol attacks this very specific part of the brain, the center for executive functioning. More than any other drug, this is where it strikes.

Now, before you get up in arms about how drunks don’t deserve a level of social protection that would divide the disability rights movement, let me remind you that there is a group of people, a very large group in fact, that suffers from the disabling effects of alcohol permanently and without ever taking a drink—babies born to mothers who drank while their were pregnant.

It is no surprise really that, if alcohol disrupts inhibitions and decision making, lowers cognitive abilities, regulation, motivation and responsibility levels in a person who drinks it, it will also attack those same parts of the brain in a fetus. As we’ve all been told at some point, there is no safe amount of alcohol in pregnancy. While more alcohol generally creates worse effects, it depends on when exactly in the development of the fetus it happens and likely on many other factors.

To be clear, I am talking about just one specific disability. But it is a disability that according to neurologists affects 1 in 20 people in the United States. It is more common than autism and at least as disruptive to daily life. It is also much harder to correctly diagnose and accommodate.

Many people with Fetal Alcohol Spectrum disorders (FASDs) throughout history have been written off by their families, communities and society at large as unmotivated, lazy, uncaring and immoral, because society misunderstands that their lack of regulation and the disruption in basic logical concepts is a disability, not a choice.

An example came up in the disability advocacy class I’m taking. The instructor repeated our movement’s call for self-determination of all young adults with disabilities. Everyone deserves to make decisions for themselves and most decisions worth making involve a certain amount of risk. “The freedom to take risks” is a popular buzz term in disability advocacy.

Several parents, myself included, raised concerns, however, explaining that policies our movement is pushing at state and national levels are directly harming people with FASD because they do not take into account the diversity of needs. A one-slogan-fits-all approach will abandon these vulnerable members of our community to the prisons and homeless encampments where far too many FASD adults end up because our society judges their disability as moral failings or lack of effort.

When parents of teens with prenatal exposure raised this concerns in class, the instructors shot down each one, dismissing the concern as “overprotective.”

I know the scourge of overprotectiveness has hounded people with disabilities for far too long. Much of my success and independence as a legally blind person is the result of my parents’ very liberal parenting in a natural environment where I was allowed to “run wild” with sighted kids. It is also the result of all those years of “passing” for sighted as a young adult and thus avoiding many other potential protective barriers. I met other visually impaired kids at summer camps when I was a teenager and was shocked to find that many who could technically see better than me couldn’t walk on slightly uneven ground unaided or cross quiet streets or climb trees.

These are examples of risks that many parents want to protect a blind child from, fearing that we cannot see the dangers. But blind people with full executive functions know their own limits better than anyone else. It isn’t the seeing that is most important in this risk taking, it’s the assessment of limits and testing of cause and effect. I didn’t rush out and jump off a cliff when I was a kid, even though there were several handy. I explored at my own pace. I learned to throw pebbles ahead of me to test the ground, since using a stick on such uneven ground as our mountain backyard wasn’t feasible. I remembered keenly every rock and hollow and hole in the meadows and every tree and fallen log in the woods. That was how I ran free as a kid and it taught me skills that translated into adult independence.

But my disability was in seeing. My children’s disabilities are in exactly the tools needed to take measured risks. They cannot test cause and effect and gain from it. They cannot explore and then predict. They cannot remember past mistakes and avoid pitfalls the next time. They can improve a little in this with development, but not through “effort,” any more than I can try harder to see.

I’ve been criticized by disability advocates for saying things like this and accused of insulting my children. This is like saying it is an insult to a blind person to insist that it is not appropriate to hold up a printed sign they can’t see. My kids have all kinds of gifts—in social interaction, in athletics, in fashion sense, in just working hard at tasks others might find too boring. But just as I cannot receive information through sight very well as a legally blind person, there are channels that are disabled for them.

Those are partly sensory and partly cognitive, but they are precisely the channels our society leans on most heavily by forcing people to make hundreds of snap decisions each day, deal with contradictory stimuli intended to trick people into impulsive behavior, always consider the long-term effect of our actions and navigate attempts at manipulation and exploitation.

Upon moving to our small town two years ago, my son was picked out as “an easy mark” by a local drug gang within a few short months. The ringleader intuitively understood that this twelve-year-old couldn’t foresee consequences. He gave him candy and compliments, and then asked him to carry packages for the gang. My son was talked into taking hundreds of dollars in cash and distributing it to “friends” at school. He didn’t make decisions in order to end up in these situations. He responded to social interactions and the predictable dangers were not apparent to him. He could not look at the possible implications or resist the temptation of immediate inputs and his strong desire to be accepted. As hard as it may be for others to swallow, these faculties are the core of his disability.

When my children become young adults, the disability rights movement as it stands today would have them decide whether or not they want a parent or guardian involved in their decisions or whether or not they want medical care or developmental disability services. They respond to momentary feelings of comfort and discomfort, rather than long-range cause and effect and they cannot conceptualize either time or the implications of decisions. A young adult with FASD may have a true long-term desire to be employed and live independently, but when it comes time to leave for work, being able to recognize the time and overcome the momentary unpleasantness of getting up early both directly challenge their disability.

An adult with FASD can be misled, defrauded, exploited, made homeless and left with out health care far too easily in our society, especially when our movement insists that each person is able to make their own decisions and spur of the moment decisions are considered definitive.

At thirteen, my son is caught up in the disability services system, which by state regulation in Oregon, insists that he should have sole decision-making power with regards to his finances. At thirteen.

Okay, you may say that’s not so bad, since he doesn’t have a lot of money and I should be the one saving for his future. That’s fine. I’m not even concerned about some serious savings plan. But he talks regularly about wanting to buy a toy drone and fly fishing equipment. These are real interests. He saves his money and works hard to plan for these things. But when he enters a store with one of the disability workers who often take him places, the rules say he can buy whatever strikes his fancy and they have a card with his money on it. And because his disability affects impulsiveness, time sense, number sense and cause and effect, he cannot conceptualize the cost to his long-term goals of buying every shiny trinket or junk food marketed to tap into his impulses.

The rules say that the disability services worker can discuss the purchase with him and remind him of his plan to save, but they have to help him spend his saved money on impulse buys if he insists on it. And he generally does because his brain lives in the moment.

To be frank, I wouldn’t do this to ANY thirteen-year-old, but so much less to a thirteen-year-old with this type of disability, and yet this is one of the rules that the disability advocacy movement has “succeeded” in forcing into state regulations. While a parent has decision-making power when it comes to the finances of most youth, I have no say in my son’s case because his developmental disability puts him in a category where “self-determination at all cost” is the law.

Even more disturbing is the Oregon law that now states that children as young as fourteen can make their own medical decisions, including refusing medical care. At the age of sixteen, they can make all health care decisions for themselves and keep these secret from their parent or guardian. There is no accommodation for children with developmental disabilities in this law, and the disability advocacy movement continues to push for ever heavier burdens of decision-making to be placed on the most vulnerable children.

My daughter is approaching the age of fifteen. She has medication that helps her to function enough to attend school most of the time and to live in a family environment safely. But the effects of the medication take days or even weeks to differentiate. These time intervals are far beyond her grasp. She can only decide to take medication or undergo other medical care based on her momentary experience of it. And a lot of medical care isn’t fun in the moment.

My daughter doesn’t yet realize that it is possible to tell a doctor “no,” so we just do what doctors recommend. But like many individuals with FASD, she has a strong aversion to authority and particularly parental authority. Given the emphasis by the disability advocacy movement on educating developmentally disabled youth about their right to refuse parental authority, she will learn soon. Neither of my children will choose help from parents or guardians now or in the foreseeable future. And the decisions they make on the spur of the moment are not in their true interests or even their real desires. They are the symptoms of the disability.

I want my children to be able to be independent. I want them to make their own plans and have goals and dreams. They do have these, and as best I can, for the moment, I protect their clearly stated plans, goals and dreams from the impulsive symptoms of their disability and from the bewildering, manipulative and exploitative corners of society.

One of the things often said by medical experts in FASD is that if someone wants to help a person with FASD, they must provide “a surrogate frontal lobe.” And this is what I attempt to do. When I’m saving for necessities or long-held desires, and I see something attractive that I keenly wish I could buy, my brain’s executive functioning center says “no.” When I feel great reluctance to undergo dental work, my brain’s executive functioning center in the frontal lobe makes me do it anyway.

My children can’t and aren’t medically expected to be able to do that for themselves. It is no different from me not being able to see. To throw them to the wolves of our society where one’s executive functions are often the only protection, is no different than putting. me behind the wheel of a car on a six-lane freeway.

I’m not likely to be chosen to coin slogans for the disability advocacy movement But I hope that we can remember our roots in radical equity as envisioned by the pioneers of our movement in 1977. They embraced disability as a fact and an identity. They asked accessibility and to seen as more than just their disability. They did not ask for their specific disabilities to be ignored or dismissed as irrelevant. All of that still applies today, and neuroscience backs it up.

Disability can affect any part of the human body or brain. Each person with a disability is different and is still a person with value. We ask that our lives, health, safety, access, inclusion, freedom and prosperity be as important as anyone else’s. We ask that when society has set things up for a certain type of person and that set up threatens the life, health, safety, access, inclusion, freedom or property of an individual that society makes changes to protect the individual’s rights. That’s it in a nutshell, ins’t it.

We have differentiated between equality and equity in our movement. Equality is saying everyone is allowed to use the steps and come into the building. Equity is making sure everyone has realistic access. Equality is saying “every person should make their own decisions in a manipulative and exploitative world and they can choose to get help or not.” Equity would be saying, “every person should have the support they need to truly make their own decisions.”

Parents, guardians and helpers of people with FASD are not being “overprotective” when we say that these individuals need real and definitive help with decision-making and risk taking. We are recognizing their specific disabilities and attempting to honor the decisions, desires and goals they express at times when their disability is not being directly challenged by stimuli they can’t process. We need the disability advocacy movement to acknowledge this disability for what it is and stand with our children. Insisting on slogans that harm the most vulnerable, because they sound good and work for most of us has already caused harm and it will continue to, if we don’t change course.

A giant movement is like a massive ship. Turning something this big wont’t be easy. But we can adapt, as we always have, to ensure that none of us are sacrificed for rhetoric.

Honey, there will come a day...

Here’s a conversation I had with my son a year ago:

“Honey, there will come a day when a friend wheedles for you to do something really dangerous or illegal. It is so important to learn how to stand up for yourself, to say ‘no’ and set limits.”

You stand there in front of me. Ten years old. Tears running down. It’s dark out. You’ve just come home after curfew and there will be consequences. The boys who live on a street that has streetlights taunted you for saying you had to leave because our street is pitch black at night. They wouldn’t return the nerf guns you lent them. They laughed and ran and shot at you from cover to draw you back into the game.

They aren’t bad boys. These are the nice ones, the polite boys who greet me (a friend’s blind, weird-looking, foreigner mother) and smile shyly when I get off the train, the ones who play with you no matter what color you are.

Creative Commons image by m-louis of Flickr.com

But they’re kids. And they’ll talk you into doing things you know will cost you. And everybody—I mean everybody—will someday have a “friend” who isn’t really a friend, someone who is bad news, who either thinks it’s funny to get you into trouble or wants to do dangerous and illegal things and finds you a convenient fall guy.

They’ll say they’ll be on lookout. They’ll have lots of reasons why you should do it first or take the more dangerous job. The shop assistant already knows them. You’re a really good bike rider. You’re taller than them. There will be “reasons.”

It will sound reasonable. It always does.

But you’re the kind who gets caught. You’re not a sneaky type. Your face is too honest. And you will be thinking about the other guy, trying to protect your friends, while they’re leaving you in the cop’s headlights. And you’re the brown one, the one more likely to get hit hard by the law.

Honey, there will come a day.

Not because you’re bad or not popular enough. You’re a good guy. You’re a good friend. And everybody has had at least one “bad news” friend. I’m not even saying it will happen because you’re too naive. I’ve had them. Everybody has had that kind of moment.

It’s what we do in that moment that matters. It depends on how used to standing up for yourself you are.

A lot of grownups will say—or even yell at you—”Just THINK! Before you do something, THINK!” That’s an easy solution for them. I want to tear my hair and rant at you too sometimes.

But you know how the doctor says those letters “ADHD”? Well, that’s because it is really hard for you to always think first. I know that. You still have to practice. Take a deep breath. Count to three… or ten. Think things through. Yup, you’ll have to.

But sometimes you won’t. Because that’s how brains are and that ADHD makes it particularly hard.

That’s why I say being able to punt the right way is important. That’s why you’ve got to have your core strong. You’ve got to know, deeper than even thinking what you will and won’t do. You’ve got to set your limits and stand up for yourself, even with friends.

This is a problem that kids have and grownups have. It never really goes away. I was about to say that it gets more complicated. But I’m not sure it does. For you, that call to stay out in the streets after dark with friends when you know it will mean you can’t come tomorrow is about as complicated as it ever needs to be.

“Come here. Get a hug. I know it’s hard. Honey, there will come a day when I will have to let go.”

In a year, it’s shocking at how close the end of my ability to protect him has come. I am reminded again and again how hard the judgements and hard edges of society fall on young, brown boys, especially those with neurodiversity.

I remember all the screw ups my brothers and I had and all the second and third chances we got, all the times we fell on soft ground and the generally softer world we lived in which had so much less in the way of addictive substances, bemusing electronics and bewildering complexity.

The chances now are just… well, a gamble, pure and simple. Give it fifteen years and I’ll tell you how the chips fall.

Laughing til you cry: The perils of overly real comedy for stress relief

This has been one hell of a week in a doozy of a month in the most disrupted year of my adult life.

It hasn't been all bad... I have been making progress to reclaim my health, but it is definitely a rocky and uneven road. I have really enjoyed winter in Eastern Oregon with the sweet air, the trees, the snow, the tracks of wild animals and even the quiet, bermed streets.

But otherwise, seriously... Gods, have mercy!

I don't want to bring anyone else down and mostly it's just the same old things everyone else is dealing with--the long grind of the pandemic with all of its costs. But there are also doctor's appointments of various kinds for me or my kids at least six times a week, my daughter's ongoing crisis, my son's renewed crisis at school and at home, special education plans and meetings for both kids, my grandmother getting covid, the father of my son's best friend dying of an overdose, family conflict and scheduling... this week has just been especially rugged.

One of the things I have learned in my journey back to better health is that the severe stress I have been dealing with for the past ten or fifteen years--largely for reasons I can't control--is likely the primary contributing factor in developing my chronic health problems. And if I want to be healthy and have energy to live joyfully, I have to find ways of reducing stress.

One of the ways I do that is to exercise as soon as my son leaves for school in the mornings. These days it's about six degrees below freezing at 7:30 in the morning and my elliptical is in the unheated free-standing garage. The hardest part is gritting my teeth through the cold until I get warmed up. But I've been listening to clips of Trevor Noah on Youtube and rationing them for exercise time. He seriously helps.

I trust you've probably heard of Trevor Noah. He's one of the few celebrities I've ever loved and it isn't just because he has good politics. It's also that he really laughs at everybody--people like him, people like me, people he agrees with and disagrees with. He has a delightful way of making heavy stuff funny without belittling it.

I get out there to the garage, shivering and working out as hard as I can to get warm and I feel my muscles relax into it as I laugh. I feel the stress shedding off of me.

Image via Unsplash

Except for this morning.

This morning I clicked on Trevor Noah's compilation of videos about white people calling the cops on black people. At first they were really funny. This stuff is so ridiculous. Yes, it's hard not to feel a bit ashamed of fellow white people, but Trevor Noah is so funny that you can get over it.

Except that most of them were about incidents involving little kids. And while he kept on laughing and making jokes and making everybody except the little kids seem like complete clowns, I have two kids who aren't black but they are "of color" and in the Czech Republic, where we came from, they are "the local black." And they're both pretty traumatized by elated crap.

And when I look at those videos, I laugh at Trevor's jokes and I think about the wider social implications, but increasingly with each video what grows and grows inside me is the sense of the trauma that the kids being threatened with cursing and pointed weapons and out-of-control police officers are experiencing.

When I look at those videos, I don't just see incidents involving strangers. I can't help but imagine my kids at those ages and how incredibly fragile and vulnerable to trauma they were at that time. I think even woke white people miss this a bit when getting outraged about how the cops are chronically called on sweet-looking little black kids.

We are upset because it's wrong and unjust and racist. But there is still an "othering" going on in a lot of woke discussions on this topic. The events are presented in woke media as unjust and egregious, but I don't see much comparison to the ultra-careful way we insist our children be treated. Most white parents I know are obsessed with ensuring that no one ever even raises their voice to their child because of possible trauma.

My son is eleven. I recently had to explain to a medical professional that he had been traumatized by "interethnic conflict" in the Czech Republic. The medical professional clearly didn't get it and asked me if the symptoms of this trauma weren't "just normal pre-adolescent adjustment."

I was hesitant to elaborate because my son was present, but in the end I gave this professional a couple of snapshots--like the time my son, at age 9, was picked up by four teens and thrown onto his back while they shouted racial epithets. He had significant bruises and a teacher was watching but did nothing. Afterward. the school refused to intervene and told me I'd have to take it up with the police. And the police said it was the school's problem.

To his credit, this particular medical professional changed his tune immediately and subsequently responded appropriately to try to help. My son is hyper-sensitive to authority, criticism, being singled out and aggression because of these traumas. His response snaps to fight or flight in a split second over the tiniest rebuke. He's back to a wall with fists balled, screaming, fury snapping in his eyes over being asked to pick up his wet towel. When I imagine my son's reaction to being approached aggressively by police with guns and an inflated sense of the threat of darker skin, my blood runs cold.

I'm betting Trevor Noah knows that the incidents he's joking about are not simply unjust but also incredibly traumatizing to the little kids involved, but he doesn't mention that part, possibly because he knows a lot of little kids are watching his show and he doesn't want to retraumatize them.

But still after the sixth or seventh clip, I realize that I'm not laughing anymore. Instead I'm sobbing uncontrollably, still trying to move the exercise machine but gasping raggedly with tears streaming down my face. I don't do the common white othering of black babies that shields us from reality as well anymore.

The last clip I watched involved a four-year-old having cursing, completely freaked-outl cops pointing guns at her and threatening to "put a cap in her head" over a snatched Barbie doll. My daughter took a pack of gum from the corner store when she was about that age. This isn't somebody else. This isn't a symbol. It's a real four year old with the sensitivity, big eyes, vulnerability and lack of developed ethics of every four year old.

I couldn't keep going. This is supposed to be a standard parenting rite of passage. Your kid swipes something from the store and you take the kid back, make them return the item and apologize. For a preschooler, it's both humiliating and terrifying just enough to make a big impression. That's how they learn. Maybe not every kid does it, but a hell of a lot of kids do it around that age.

And any police officers involved are supposed to use a calm voice, squat down to the preschooler's level and give them a good lecture about right and wrong. That's their job, which I have seen them do quite well when the kid caught filching was white.

I rarely turn something off because it's too intense, but I did that time. This was no longer relieving stress. And I know that this stress is just some of the stress that black parents experience all the time. But that is why they also suffer from a very high incidence of chronic health problems a lot like mine.

I'm not going to avoid or ignore these realities. In the interests of relieving stress, writing about it is more effective than just watching and dwelling on it. I'll be back to Trevor Noah another day and I'll laugh at the hard stuff and feel the stress fall away.

Learning reciprocity the hard way

With Mother’s Day just past, it’s still on my mind. There was a time when I thought Mother’s Day was nothing but a saccharine, commercial holiday. I was unimpressed even with the cards teachers force kids to write to their mothers. And then, there were the years when I was battling infertility and Mother’s Day was like a knife twisting in my gut.

I have a new perspective now.

First of all, I’ve been reading Braiding Sweetgrass: Indigenous Wisdom, Scientific, Knowledge and the Teachings of Plants by Robin Wall Kimmerer. It has taken its place among the select handful of books that are my all-time favorites. It’s that good.

Image via Pixabay

The primary theme is reciprocity with the natural world. One of the big questions explored in the book is whether or not gratitude, including overt expression of thanks, is “enough.” Does our gratitude somehow repay the natural world for all that we take and for the great harm human beings are doing to the earth’s ecosystems?

The answer is complex. There are some ways in which Kimmerer argues that gratitude is a particular gift that humans have to offer and that all that is asked of us is that we give the gifts that come naturally. But then there are ways in which it is clear that most humans have lost touch with the cycles of reciprocity and this is a grievous loss.

That was kind of the theme of Mother’s Day this year for me.

For us it was COVID-19 lockdown day 61. Being trapped in quarantine for two months with any three other people will tend to highlight their shortcomings for you and strain whatever relationship you have. In our case, we are nearly at the point of psychological collapse.

That has a lot to do with various disabilities. I’m nearly blind and the other three people in my household are dyslectic, which entails not just problems learning to read but also lifelong struggles with organization and attention to detail. Anyone who lives with a blind person will know that organization and attention to detail are the keys to success. On top of that, one of the kids has significant behavioral and psychiatric problems.

I’m the mother in this zoo of needs, the one responsible for filling bellies, soothing hurts and ultimately imparting values. I have spent the past eleven years doing everything I can to raise children with the values of respect and reciprocity. And by any measure, at this COVID-19 moment, I have failed miserably at that, whether it is entirely my fault or not.

This past Mother’s Day, my kids, ages 9 and 11, were at the end of a three-day weekend, because May 8 is a state holiday here. They had been out riding bikes both of the previous days in the sunshine and had no responsibilities. On Sunday, they needed to catch up a few things for school and do a small chore each to help out around the house.

Several hours of screaming, cussing, hitting and throwing everything within reach ensued.

“You’re the worst parents ever!” “I wish I had a different mom!” “I wish you would die!” “I hate you!” “Every other kid in the world has an iPhone, except me!” “No one else has to do chores!” “You are supposed to be my servant!” The screeches bounced off the walls (but they are edited here to exclude vulgarity. simply because I don’t feel like repeating those parts)

In the end, I didn’t get any vaguely cubist pictures featuring hearts this year. I didn’t even get any hugs and my kids never did do kisses. I haven’t ever actually experienced breakfast in bed and it certainly wasn’t on the menu this year. I didn’t get flowers and instead my eleven-year-old pulled up the flower starts I had put in window boxes, taunting me through the kitchen window while she tore the tender roots to shreds because I wouldn’t let her have video games before her homework was done.

So, it wasn’t much like the way Mother’s Day is portrayed in popular culture.

I did overhear the phone tutor trying to get my children to draw me a picture for Mother’s Day. They didn’t. My husband is too overwhelmed to make them do it or to think about values beyond survival.

The whole thing made me think about reciprocity, the value of gratitude and the role of ever-giving, sacrificial mother. This is essentially how we treat the earth, isn’t it?

When I spend hours cooking from scratch only to have my family make gagging noises at the table and complain that other kids get packaged food, I think of the earth giving us endless crops, despite our abuse of the soil through chemical fertilizers and harmful monocultures. When I have to shield my particularly vulnerable eyes with my arm, while the kids throw pencils and toy cars at my face, I think of the rare-earth mining operations that gouge deep into the planet to make my phone and computer.

My children have a lot of needs and even more desires. Perhaps like the earth, I signed up to be a mother, but I couldn’t possibly have known what the cost would be. It isn’t so much the work, the gray hairs, the long nights, the exhaustion or the endless homework sessions that get me down.

It’s the words and the disrespect that hurt. I wonder if the earth feels the same way.

Of course, there are scientific reasons why the earth is hurting and none of them have directly to do with our expressions of appreciation, or lack their of. But Kimmerer makes a compelling argument as to why gratitude physically and biologically, as well as spiritually, matters to plants and ecosystems.

We know it matters in relationships. Despite my very unpleasant experiences of Mother’s Day, I’m actually a proponent of it. I know it is used and abused for commercial purposes far too often. But there is nothing like NOT getting a smudged picture of a stick figure mother and child to make you value one.

I am glad mothers are given at least one day of gratitude and appreciation. It may be too much like Earth Day, when some of us do the same for the earth without giving much thought the rest of the year. But either is a call for us to rejoin the circle of reciprocity. And this year, even more than most, I have learned how the earth must feel as an unacknowledged mother and my resolve to do right by her is renewed.

Would gratitude and appreciation be “enough?” If I did get Mother’s Day cards and “thank you” when I cook a meal?

Would it erase every other trouble? I doubt it.

But I think it might just be “enough” in a way. I have a lot to give as a mother. My well is deep. Just not bottomless.

The earth is like that too. She’s a mother with vast resources, just not endless resources. If we treated the earth the way we say people should treat their human mothers, with some basic appreciation and gratitude, as Kimmerer asks, there might just be hope for us after all.

Gratitude lessons

Seven fifteen on a Monday morning.

I’ve managed to get the kids up and dressed. I didn’t manage to do my meditation before dawn. It was another interrupted night, but I’m at least half awake.

My fourth-grade daughter is eating her cereal when she cocks her head, frowns and declares, “I forgot about some homework for today. I have to find out about the Age of Gold and tell about it in class.”

We don’t live in one of those kind, gentle school systems with lots of second chances. There are cumulative consequences and my daughter is already struggling. She cares a little but not much, and her multiple learning disabilities make it easy for her to forget. This time she asks for help… nicely for a change.

The kids’ encyclopedias are missing from their places and both claim no knowledge of their whereabouts. I rush to start the computer. She has to leave by 7:30 to get to school in time. And the research info has to be in Czech.

Wait… “The Age of Gold?” I didn’t know there was one.

I do a quick Google search and find dozens of advertisements for gold jewelry, endless gratuitous references to something being “the golden age of …. whatever” and nothing on a historical “Age of Gold.”

“MOM! I’m going to be late!” my daughter’s voice isn’t nice any more.

Creative Commons image by Liz West

I try another type of search. I am sure by now that no one refers to an “Age of Gold” in English histories, but that doesn’t mean the Czechs don’t have one. It could have been the era when royalty in the valley of Bohemia got a bunch of gold for one of those ridiculous crowns that make you pity young medieval kings—for all I know.

“Stupid idiot!” My daughter curses her younger brother in a loud hiss from the hallway, “Get out of the chair! I want to sit there!” There is only one chair for putting on shoes in our tiny hallway.

He shrieks in pain. It’s the standard thing that happens if I’m not there to physically separate them while they get there coats and shoes before school.

And I come unglued.

I tried to help her because she did ask nicely and the consequences of completely blowing off the assignment will be harsh. There are no accommodations for kids with learning disabilities. But I make a massive effort to teach my kids both responsibility and kindness.

My daughter regularly has to do “do-overs”. to speak nicely or do push-ups and squats for hitting and pushing or do “time out” for total freak-outs. She gets the consequences of poor grades regularly and we talk about cause and effect while tucking the kids into bed.

It isn’t the forgotten (or possibly blown off) homework that really gets me. It isn’t even the constant hitting, pushing and general meanness, it is the utter lack of awareness that someone is doing something FOR her. I’ll admit that I’m oversensitive to this at the moment because I find it to be a chronic deficit among the adults in my vicinity as well.

In the environmental organization where I volunteer, we had a crisis a couple of months ago We had several major actions set up but no one willing to volunteer to guide journalists around the site and answer questions. I would have done it myself, except it all had to be done in a language I speak with an accent (and occasionally creative grammar). No one wanted me in that role—least of all me—so I went looking for volunteers with the promise of my presence and support.

Finally, I found a petite young mother who wasn’t in a position to do the major organizing roles or to do direct action—given that she had a toddler in tow—but she was passionate and wanted a volunteer job. So, with a crash course in media relations she went into action. For two months she threw herself into the task. Finally, we had the media issue covered.

But then a competent professional came along. As a journalist, I’ll be the first to admit that he knows his stuff and he’ll likely do a great job. But there was one small problem. He didn’t thank the young woman, who had set everything up for him and held down the fort through those first rugged months. The organizers didn’t thank her for saving our bacon back in August. She was overstepped by the professional and dismissed.

I also worked as a full-time volunteer for two months last summer. I had some time off of work and time when my kids were with their grandmother. Instead of taking that time to write a new book or study medicinal herbs, I threw myself into the struggle for climate justice because it is the burning issue of our times and self-respect demands it of me..

I didn’t go into it because I wanted to be thanked or even appreciated, anymore than the impromptu press spokeswoman did. But I will admit that the respect I felt from other activists for the work I did was a major source of my intense physical and mental energy in those months. It was a much needed boost.

Through the summer, I welcomed, nurtured and trained hundreds of new volunteers. And I have been thanked at times, and once the people in my closest team commissioned a chocolate cake with my name on it when I stepped down as coordinator to give someone else a shot at the role. Thanks isn’t why you do it, but it matters.

As I breathe in the crisp air of late autumn in my withered garden, I discover something unexpected to be thankful for. The power dynamics I witnessed as an activist this time around have given me an unforeseen gift—just the plot twist I needed for a novel outline I’d been stuck with for more than a year now.

I come in with my cheeks burning from the cold, get some tea and head to my writing corner. While last year my writing muscles were exhausted and I could barely get through these blogs, let alone start on another book, I’m ready. Really ready.

That is something to be thankful for.

I am, of course, thankful for the tree just outside my door. I’m thankful for my husband, imperfect as he is who none-the-less means I’m not doing it all alone. I’m thankful that, after long struggle, our children are home. I’m thankful for mostly functional technology that makes the life of a mostly blind person much easier than it otherwise would be. I’m thankful for the literal fruits of my garden, my animals and this first blast of cold winter wind. I’m thankful for the warmth from my radiator and other small luxuries, for the very fact that I can write and my words do not stay silent in a box.

Gratitude is the most necessary element of relationship, even when it is the mere acknowledgement of a helpful presence or a mundane task done well for others. Gratitude is likely at least part of the key that we are missing in our disconnected world.

I am not a vegetarian for health reasons. But I am mindful in the way I eat and live. My thanks goes out to the animals and plants that I need to eat in order to live. And I wonder how the global crisis of meat production might be altered if everyone would take a moment to thank each animal consumed. It isn’t that often or that much for most of us. Many cultures used to do it and that one thing alone, might make all the difference.

P.S. There isn’t an “Age of Gold” even in Czech. She meant the “Age of Bronze”. or the Bronze Age but got her metals mixed up. Another frantic search in which the only purpose was caring for a child as best I can.

ADHD, brain regulation and guided meditation: An actual parenting tip from Arie

I think my readers might tend to cringe, when I mention parenting. No one has told me they do. I’m just guessing because my posts about parenting tend to fall into three categories: 1. how blind people parent, 2. how not to parent and how miserable it can be, or 3. sarcasm and snark.

I really have read dozens of parenting books, actually implemented their methods, found them to work great with 90 percent of kids and occasionally to fail entirely. That has led to a lot of my cynicism.

Creative Commons image by Seattle Municipal Archive

It isn’t that the methods don’t work. If you are a frazzled parent and you don’t know about counting in an ominous tone, time outs, making everything out to be your kid’s choice when it actually means you are in charge, avoiding power struggles and teaching through your own example, by all means, go read the experts. I specifically recommend:

Parenting by Temperament,

Pick Up Your Socks,

Easy to Love, Difficult to Discipline,

and depending on your circumstances Attachment in Adoption

However, my posts tend to assume you are like me—a parent who is obsessive enough to research and read books before the kid can even walk (or let’s be honest, before the kid is even born). That’s why I don’t generally go on about the methods in these books, which you should most definitely read and practice.

It’s the five percent of the time when they just plain don’t work that will kill you, cause premature hair loss and end your marriage or partnership. And I usually don’t have much beyond commiseration to offer those of you who have run into that wall with me.

But today I do actually have something worth sharing, a technique I have NOT found in any expert parenting book, which actually worked wonders on my out-of-control, neuro-diverse kid.

Bedtime is often a nightmare for parents of neuro-diverse kids. Some kids don’t run on the same schedule as the school bells or even the sun. Some kids can’t just tell their brains it’s time to calm down and go to sleep. Some kids don’t know what to do with exhaustion and instead of winding down, they amp up.

I have kept a very strict routine with my kids, ever since the day we brought them home. Routine helps. Like a train on rails, my daughter will often stumble from one part to another—with hissing steam and screeching noises but in the end shunted from the teeth-brushing track, to the pajamas track to the story track to the bed track. On a good night, the routine takes only an hour and a half, now that she’s ten.

But not every night is a good night. At age ten, my daughter still has frequent meltdowns and needs the kind of supervision usually reserved for the under-three crowd. By the end of the day, whoever has been dealing with her—and her load of homework assigned by the school in hopes of keeping her somewhere in the ballpark of grade level—is staggering on their feet.

There are nights when after all of it, after the hours of one-on-one attention and the lengthy, carefully designed bedtime routine, she won’t go to sleep. She is up and around the house after bedtime. She wants snacks and she shrieks in protest. Getting her into bed is a literal physical battle that we still win by main force but only just. And then nothing can hold her there and no one can sleep with the racket.

This strife goes on anywhere from one to two hours on those nights and they averaged about once a week, up until recently.

I want to be very clear here about what directly preceded this bit of creative parenting. That is I had two full days and two nights at home alone. My husband took the kids on a skiing trip, returning so drunk with exhaustion out of a snowy night that I shuddered to think of how he managed the two-and-a-half-hour drive.

I sent him straight to bed and prepared to do battle alone, well rested as I was.

I got both kids out of their tight, damp skiing clothes and fed them. My eight-year-old son was blinking and crying, he was so tired. I knew I couldn’t physically handle both, so I got his teeth brushed and let him fall into bed first. He was literally asleep within seconds.

Then I tackled the more difficult kid. My daughter was exhausted too, lashing out randomly and swinging wildly from glee to rage. Her entire body hummed with tension. I could feel it as I helped her undress and brush her teeth. I told her a brief story and settled her down with her audio book in hopes that physical exhaustion would do its magic.

But no such luck. Not that night.

Thirty minutes turned into 40 minutes beyond bedtime and even my two-day reserve of regenerated energy was starting to flag. She wouldn’t even stay in bed to listen to her story and when she was up, she was into everything, requiring constant supervision and making nerve-rattling shrieks every one to two seconds. A hand on her shoulder told me that her body still thrummed with pent-up energy.

On most nights, this would have been the point where I started laying down the law and rolling out consequences, “You can choose. Either you stay up and keep me up and you won’t be able to have audio book tomorrow night or you lay down and relax and go to sleep and you’ll still have audio book tomorrow.” And so forth. It only occasionally works anyway.

Many nights the chaos continues for another hour and finally ends in her being locked in her room until she wears herself out—not a stellar parenting performance.

One of the more helpful things I had recently gleaned from rereading a few of the expert books was to focus on the concept of addressing the child’s deeper need. Clearly, my daughter needed sleep. She was exhausted, but she had no idea how to calm her dis-regulated brain and win some peace.

As a high-strung creative person, I do know what it is like to be exhausted after a long day’s work and to lie in bed with nerves jangling, a thousand thoughts whirling around my brain. Prominent among those thoughts is often the desperate need to sleep, in order to be ready for the challenges and trials of the next day.

So, I asked myself, how I get to sleep when I’m in such a state?

“Badly,” came quickly to mind. But also “quietly.” On such nights, I often lie awake in silence after it is clear that no audio book is going to help. I do relaxation exercises, deep breathing and progressive muscle contraction and release, which make me feel virtuous but don’t make me sleep. And then, more than anything I descend into a childhood fantasy and rehash versions of the adventurous and purposeful life I once dreamed of.

And that usually does help.

With that thought and the understanding that much of my daughter’s difficulty comes from an inability to regulate her own brain and do such things for herself, I came and sat on the edge of her bed and began to make up the fantasy for her.

At first, she was too jittery even to listen or lie down. I had to grab her attention mercilessly. I know what she obsesses over after all—preteen YouTube celebrity girls with shopping infomercials and flaunting conspicuous wealth. There isn’t much beyond kinky sex and hard drugs I would less like my child to be delving into at this age but desperate times call for desperate measures.

“Imagine you’re at the most beautiful park you’ve ever seen with all your friends from school and Everly, Ava and Jojo Siwa are there too, just to see you…”

She stopped jerking around and actually settled back on her pillow, her eyes wide and staring. I could still feel her muscles pulsing with nervous energy through the blanket but at least she was in the actual bed.

“It’s your birthday party,” I continued, “and everyone is there to wish you a happy birthday and play with you in the warm sunshine. There are fun things to climb on and the most beautiful cake you can imagine.”

The way my words came out made me think of those relaxation exercises I had so little luck with. I was originally taught those by an eccentric French teacher in my tiny rural high school in Oregon. She had the five kids in her class, me and four ranch kids, lie on the floor of loose wooden boards and do relaxation exercises.

She had also done guided meditation, which the boys had interspersed with rude comments. I had been cooperative but more because I felt a bit sorry for the teacher than anything else. I never did like guided meditation. I encountered it again at a handful of workshops and events over the years.

It didn’t work for me because my brain is entirely capable of paying full attention to the audio meditation, doing the visualizations and thinking of one or two other complex things at the same time. It isn’t relaxing because it doesn’t overwhelm me enough. It is not that other thoughts intrude on the meditation. They simply occur in a different place and the meditation continues without a hitch.

I did eventually find a form of meditation that consumes enough of my consciousness to work as intended but it requires memorized recitation along with practiced movements. Once the words and movements became automatic to me, the meditation worked because it was difficult enough that it took all the excess brain activity with it.

My daughter’s brain is probably the opposite of mine. That has been a large part of our miscommunication. For me, directing my mental attention to something or doing several mental things at the same time is no problem. The only significant problem is prolonged lack of mental activity.

So, it occurred to me that while guided meditation might be boring and insufficient for me, it might be immensely relaxing and freeing to her. Released from the need to try to control her brain, she could coast to sleep on a ready-made fantasy.

I could tell right away that the fantasy I had constructed for her, while successfully capturing her attention was too exciting to induce sleep. Slowly I shifted the focus of the words, describing more the surrounding natural environment and less of the celebrities and then even gently removing the other people from the picture.

“Your friends step into little boats on the lake and start to drift away over the waves. They float slowly up and down, up and down. And they wave back to you calling, ‘Good bye! We love you! Have a good rest!' As they drift away you sit down under the big oak tree. You can feel the warm, smooth bark on your back. You slide down to feel the soft, dry moss under the tree and lay your head on a soft, moss-covered root.”

I could feel her miraculously relaxing. Even her breath was calming. I included some deep breaths in the story and almost magically she took deep breaths as suggested, something that is usually impossible for her

Finally, I concluded the story with my daughter drifting into sleep in the beautiful park by the lake. The entire guided meditation took only about eight minutes. When I stood up, she made one drowsy noise but subsided again. I left the room and didn’t hear from her for the rest of the night.

Since then I’ve used guided fantasy to calm her several times in situations where she used to be unable to calm. Certainly children are as diverse as different species of animals. Just as this type of meditation didn’t work for me, it may not help many children. But what is universal in the technique is the parenting tool of looking at what the child needs on a deeper level and designing something that fits the child’s specific temperament to reach that goal.

How you get the exhausted child to sleep or the frustrated child to calm enough to complete their homework is not that important. We get stuck on having a specific way that such things should be done. There is a standard way that works pretty well with most kids, but not with all neuro-diverse kids.

“Do what works,” a fellow disability rights activist used to tell me. “Just do what works, regardless of how it looks.”

I hope someday my daughter will be able to learn to use guided meditation tapes to steer her own brain and gain a sense of self mastery. I’ve gained a new respect for a technique I previously rejected as too simplistic and manipulative. We all need different things.

On parenting, as usual, don’t judge other parents and do what works.

How to be a good-enough parent

”This kid was whining, saying his mom’s name over an over again. She couldn’t even get him to stop.”

All it takes is one of those comments, usually about the bad behavior of kids or families with children getting in the way and a flood is unleashed. Whether the person making the original comment was judging the parent or not, most people jump to the conclusion that the child’s parent is to blame.

Parent shaming is more popular than fat shaming. It’s the most socially acceptable form of public shaming in our society.

If you’re like me and not made of dried rawhide, you probably want to avoid it pretty bad. Fortunately, I’ve read just about every parenting book on the market, and according to some flatterers, I have quite a few parenting tricks up my sleeve.

So here is my fool-proof guide to avoiding parent shame and winning the coveted twenty-first-century “good enough” parent medal.

Creative Commons image via Pixabay

Before you start

• One of the main reasons parents are shamed is because of overpopulation. Before you start, consider whether or not you should. Our world is suffering from population explosion and ecological collapse. It could be argued… and in practice will be argued that you are selfish for insisting on procreating your own special genes.

• The easiest way to avoid parent shaming is not to become a parent. Sure, we need to have a next generation to keep the economy going while those virtuous adults who choose not to burden the earth with their off-spring get old, but you might want to leave that up to someone else.

• Another way to avoid the overpopulation and ecology shamers and still be a parent is to adopt. But you’ll be shamed for adopting too. There are stories about adoptive parents exploiting poor people in other countries and buying children. Even though you personally might not have done that, you can be sure that every time the subject of how you adopted kids is brought up, this issue will be rehashed and you’ll be publicly shamed about it.

• If you either already have kids or still think you can have kids and avoid shame too, read on.

The loving foundation

• Most people at least claim that they believe the most important part of parenting is love. It all starts with love and the worst shame any parent can have is to be accused of not loving their kid enough, or heaven forbid, loving one kid more than another. There should be nothing your kid could do that would cause you to stop loving him or her. Well, a school shooting, yeah, then you should stop loving them but other than that. Be unconditionally, unendingly, inexhaustably loving.

• But not too loving. Don’t smother. Don’t be biased in favor of your kid at public events. Lots of shame comes to those parents who cheer too much or protect their kid from criticism or favor their kid over others.

• Be loving but know precisely when your child doesn’t want to be kissed or hugged anymore. Physical affection is essential. Just because your child pulls away or shouts obscenities at you doesn’t mean they’ve grown out of the hugging phase. They still need loving hugs, up until the point that they don’t. You have to know where that invisible line is. Stop hugging too early and you’re cold and creating needy sociopathic monsters. Too late and you’re a pathetic cliche.

• Be loving from a distance when they decide they don’t want to have anything to do with you as young adults. Be loving but have no emotions. Love but don’t expect love back. Be immune to screaming, hateful diatribes. Accept them with equanimity.

Balancing parenting and career

• Provide for all of your child’s physical and emotional needs. Make sure you have a job that pays well, so that your child never has to be exposed to black mold, a leaky roof, a dangerous neighborhood, cheap and unhealthy food, bully-target clothing or unsafe, cheap toys. Financially poor parents are among the first to be shamed everywhere. If you didn’t have good job prospects, you never should have had the off-spring, so buck up and make money.

• Moms, be especially sure to have a prestigious job, Set a good example for your daughters. It is unforgivable to give girls the impression that their options are limited. And boys need to see women as powerful and prestigious providers too. Feminists are great at shaming moms who break ranks and don’t get a career. Half-time and place-holding jobs don’t cut it. You’re sending a message that women are limited by their biological childbearing function.

• Not only must your job be prestigious and keep you out of poverty, it must guarantee a stimulating environment for your child, including expensive educational toys and legos, toddler foreign language and music classes, memberships to sports, arts and crafts clubs and courses, and vacations to exciting places. If your child lags in academics, you clearly missed some of these requirements and it’s all your fault.

• At the same time, you must be present and attentive to your kids pretty much all the time. If doing this while satisfying the points above requires breaking the space-time continuum, tough beans. Nannies are a lazy-parent trick. Parents who rely on nannies for more than emergencies deserve the shaming they routinely get.

• Make sure you are home with your kids for at least the first three years of their lives and that you are there when they leave for school and when they get home. In fact, while exercise is good, not driving your kids to school is shame-worthy if you live within a 200-mile radius of any historical child-kidnapping incident, which defines every inhabited place on the planet, except maybe some remote cabins in Greenland.

• What your kids need more than anything is your constant, reassuring and playful presence. It is the single most important factor in the development of their self-confidence and their educational success. Of course, their day at school needs to be as short as possible and not lengthened by after-school programs, so that you can selfishly work longer hours. They are just children after all and their growing brains cannot handle long days the way adults can. You know who those whispers at pick-up time are about.

Tackling the housework

• If you were thinking that you can game the previous section by working from home or running a business out of your home, this point is specifically for you.

• Embrace the mess. Kids are naturally messy and it is unnatural and harmful to deny them the right to be messy or to force them to live in too sterile an environment (defined as spaces in which more than 50 percent of the floor area is walkable). When social workers enter a home on a child-abuse tip, a too-clean home is one of the red flags they are looking for. Shame on those clean-freak parents!

• Also cleaning does not count as being present and attentive. You need to be playing with your kids, engaging in child-led activities (such as being the evil queen, lady’s made, monster or bad guy running from miniature cops). Cleaning must be kept to a minimum and done only when the kids are asleep, which rules out most home businesses.

• Ensure a hygienic and stimulating environment for your child. Those same social workers are also looking for cluttered and dirty homes. That goes right on the form. Parents who are slobs and have clearly not washed their floor since it was puked on and who have clutter covering a lot of grime will certainly get shamed.

• Also clutter doesn’t count as a stimulating environment. If your kids can’t find their educational toys or the pieces to all those games or the wheels of their lego sets, they won’t get the advantages those toys provide.

The care and feeding of littles

• Ensure that your kids get good nutrition. Processed and prepackaged foods are the worst. Restaurant foods are also highly salted and sugared and full of harmful GMOs, white flour and trans fats. The harm these foods do to a child’s body and brain is truly horrific, including the development of allergies, neurological disorders, obesity, immune disorders and lifelong risks for diabetes and heart disease. (In fact, if your child already has any of those conditions or autism or ADHD, you are pretty much sunk on avoiding parent shame. You will inevitably be told that all they need is a better diet.)

• You really need to cook from scratch. Bake whole-grain breads, but make sure you test for gluten sensitivities and learn to bake the gluten-free kind, if necessary. Note that cooking, like cleaning, doesn’t count as being present and you’ll need to do it while the kids are asleep or at school.

• You’ll also have to satisfy both the vegetarian shamers and the “kids need a lot of protein to grow” shamers, but I’ll leave that one up to you.

• Always keep in mind that sugar and nutrient deficient simple carbohydrates like rice, white bread, noodles and fries must be kept to a minimum. Did I mention that ketchup is mostly sugar? A lot of bad parents around you will be feeding their kids pretty much only these foods—right in front of your kids unless you keep them locked away from society. Because these foods are specifically designed to be attractive and biologically our bodies crave simple carbohydrates, your kids will beg for them. The shame is so easy to slide into.

• And the most important rule about food is that you must never ever force your kids to eat something. You must provide healthy food, while they watch other kids both in person and on TV consume junk food and fast food. But forcing your kids to eat is one of the easiest things to shame parents about.

• Food can never become a point of controversy in your home, or you will be “creating eating disorders.”

Fostering education and self-confidence

• Children are the future and even people who don’t have children will rely on your children’s economic activity when our generation is old, so education is a hugely important part of parenting—the most important part according to many. You must ensure not just adequate but excellent education for your child, if he or she is to have any hope of surviving in the competitive economy these days.

• As a preschooler, your child needs bright, fun, educational classes in foreign languages, brain development, music and art, and you should be present or right outside the door at all times.

• You should carefully choose your child’s school. The only consideration allowed when looking at cost or transportation times is the child’s comfort, not yours or your selfish work schedule. You must get your child into a high-quality school or all the rest is your fault.

• Teachers will expect you to devote several hours to your child’s education every evening, to keep all records and projects in perfect order, to go through backpacks and school materials and replace anything lost in the classroom jumble and to ensure that homework is completed and that the child actually understands what he or she is doing, rather than just parroting answers you gave.

• Remember while average academic success on an assignment gets a C, which implies that most kids will get that kind of grade, you must make sure your kid isn’t one of them. C students can’t expect professional or academic success and parents of C students are lazy slouchers.

• Oh, and never pressure your child about academics. The most important thing you can do for your child’s academic success is to boost his or her self-confidence with lots of praise. Praise your child’s every effort and reward good grades but not to the extent that any other child who is not so successful will suffer low self-confidence. Excessive praise would be as unforgivable as pressuring your child to succeed.

• If they don’t succeed academically, it is your shame, not theirs.

Screen time, consumerism and socialization

• If a child has social problems at school, it is the parent’s fault. Usually the parent has not provided the right kind of or new enough clothing, school supplies, accessories or toys. That or the parent is extreme and doesn’t allow the child to watch the popular entertainment of the day or play the current video games. Such a child cannot keep up with what the other kids are interested in. Kids will often be unpopular or even experience bullying when they come from extreme households that don’t allow these modern influences.

• But of course you shouldn’t allow your child to be indoctrinated by consumerism either. There is nothing worse than a whiny, consumerist brat, constantly demanding this and that and thinking only of themselves. You need to identify the exact amount of toys, clothes and consumer items your kids need to survive socially and yet not become spoiled brats. It’s up to you and shame on you if you miss the mark!

• You’ve no doubt seen the studies about the harmful effects of too much screen time on kids. You must carefully limit your child’s exposure to television, movies, video games and social media. Fifteen to thirty minutes per day might not be harmful but you have got to shut it off after that.

• Also make sure the experience of shutting off the screens isn’t traumatizing to your child. That’s another reason parents get shamed.

• And make sure that the denial of this forbidden fruit doesn’t result in your child being obsessed with screen-based entertainment. One more reason.

Morality without forced religion

• Instead of consumerism and entertainment, make sure your child has a spiritual grounding and a healthy desire to help others. Involve your child in groups and communities which are focused on spiritual values. And above all teach your child right from wrong. This is one of many areas that parents are shamed for neglecting when their children get into trouble.

• But never ever force a religion or spiritual beliefs on your child. Spiritual abuse is real and often turns kids away from spirituality entirely, which is also the parent’s fault. You can take them to a place of worship a couple of times, but don’t force them to go once they are old enough to wish to play video games instead. They will have to develop altruism and ethics without the structures that every previous generation of humanity relied upon for their spiritual development, and it’s your job to make sure they do (without the help of clergy).

The big one: Behavior and discipline

• When it comes to separating right from wrong, it is important that you understand the difference between discipline and punishment. You must ensure that your child is disciplined but never punished. Punishment destroys self-confidence and thus higher brain functions.

• You must teach your child how to behave well, or you will certainly be shamed. But you must never be harsh or punitive. You’ll not only be shamed. You could even be investigated by the authorities, the ultimate shame.

• There are truck-loads of parenting books about how to ensure respectful and responsible behavior without harsh measures. They all rely on the idea that if you approach your child properly, they will inevitably respond reasonably and logically. Any childish lack of logic or other abnormality that causes your child to misbehave despite the expert strategies. reward charts and carefully phrased respectful reminders is probably your fault too, possibly something you did during pregnancy.

• You may remind your children of the rules, ask them to sit in “time out” if they become too upset, ask them to ‘do over” whatever they did with poor behavior and provide positive reinforcement when they do behave well.

• You will be held personally, legally and morally responsible for each and every one of your child’s misdeeds, but you are never allowed to punish them for it. You must be consistent with your rules and guarantee their sanctity, but you must never physically force or confine your child. You can gently remind them of the benefits of following your hard-and-fast, but punitively revoking privileges is no different from punishment.

• You must at all times treat your child with the same respect you accord to well-behaved adults, even while your child is screaming insults, throwing food in your face and poking his or her siblings in the eye for fun. Respect, say the parenting rules of logic and reason, begets respect, and if it doesn’t, you must have done it wrong.

• Don’t be a helicopter parent. Allow your child to take risks, so that they understand natural consequences. Natural consequences are the key part of non-punitive discipline. Instead of your punishments, your child should incur the natural consequences of their actions.

• Of course, you should not allow your child to incur any of the consequences on the following list, or you are a criminally neglectful parent: physical harm, cold, dangerous heat, sunburn, tooth decay, malnutrition, allergic reactions, exposure to dangerous organisms, illness, exposure to dangerous substances, consumption of unhealthy food and its long-term health effects, sleep deprivation, educational failure, social ostracism, emotional trauma or public shame and disgrace. The public shame must be all yours when you fail at parenting. You must protect your child from all of the real consequences while not punishing and not helicoptering.

• When your child does something even mildly annoying in public, you will be shamed. You need to ensure that your child does not annoy others. After all, you cannot impose your life choices to have a child on those who chose not to have children, even if they are counting on the next generation to keep the Social Security system ticking when they’re old. If your child whines, repeats annoying words, pesters you for attention, fidgets, taps things or otherwise is seen or heard in an annoying fashion, it is clearly because you failed at the point on discipline. You must be attentive and stop the annoying behavior one way or another immediately. However, you must remember to never be punitive or harsh. Otherwise you will not only be publicly shamed but reported to the authorities.

Keeping it all together

• If doing all this, while working a sufficiently lucrative job, cooking from scratch and making sure your kids’ homework gets done, sounds tough, have no fear. Today people also shame parents for not doing self-care and taking time for their marriages.

• You must take time for yourself. Go away for at least a couple of days per month with your spouse to ensure your family is rock solid. If your marriage falls apart, your kids will suffer and you’ll never live down the parent shame. (While planning this mandatory self-care, remember what happens to parents who hire nannies and sitters.)

• If you’re stressed out, harried and gray-haired as a parent, your tone of voice will not be loving enough. Get enough sleep after the kids are in bed, the cleaning and cooking that you can’t do when they’re awake is done and the bills are paid. That’s the only way to avoid the shame of being willfully sleep deprived. You’ll need to use your skills with physics to stretch time in order to make time for reading novels, massage and other quality me-time activities. Remember there’s no excuse for not taking care of yourself, so you can be a good-enough parent.

My best tip is that the next time someone parent-shames you, make them read this.

Good luck! You’ll need it.